The Turner Syndrome GreatHeighTS Clinic
at Children's Mercy Hospital

The clinic is a comprehensive medical approach to providing care
for the more than 70 Turner Syndrome patients in the region.

The clinic is held once every four months and offers
patients and families an opportunity to meet with multiple
pediatric specialists in one convenient location.
Each child's visit includes complete lab and X-ray procedures.
During the one-day clinic, families and patients are invited to
take part in social activities that promote a sense of community.

An educational presentation is provided over the lunch hour
to increase understanding of TS and facilitiate
communication between providers and families.

A "Pink Party" room is available for the girls! There are crafts and they
can be treated with getting their hair done, nails painted and make up!

Services Provided


We are thrilled to announce that Angela Bright from Project Rise will be
speaking at the March 10 Lunch and Learn at the Great HeighTS Clinic.

Project Rise is a Children’s Mercy program that provides employment-related
resource and career guidance to teen patients. Participants experience chronic
health conditions or limitations that may affect employment options.
Services include individual guidance, small group classes called the
Career Academy, employment and volunteer opportunities.

Please join us at noon on March 10th to learn more about Project Rise and
get tips on how to start exploring future career choices, gain skills in
developing resumes and ace an interview. There will be a table in
Endocrine waiting room where Angela will be available for questions.

Click here to learn more
Children's Mercy Endocrinology and Diabetes Kansas City

To see a local news story about the Great HeighTS clinic go to

Mark your calendars for the
2017 GreatHeighTS Clinic Dates:
Friday, March 10
Friday, June 30
Friday, November 10

Semi-Annual Chapter Meeting
Saturday, March 11, 2017
11am - 1pm
St. Joseph Medical Center–Community Center
1000 Carondelet Drive
Kansas City, MO 64114

Please join us for our semi-annual business meeting.
We will meet in the Community Center

We will hear from an organizational expert and discuss upcoming events.
Our organizational expert is Courtney Bade Gras.
She will share all kinds of great tips and tricks
to make our lives more organized!

Lunch will be provided! If you have any special
dietary needs and/or restrictions, please let us know!

3rd Annual
Turner Syndrome Global Alliance (TSGA)
Kaleidoscope Walk

Sunday, April 23rd
11:30am - 2:30pm
Ironwoods Park
Leawood, KS

To register your VIB, go to:

And join the FB event at:

click here for more information
Turner Syndrome Global Alliance

The TSSUS 2017 National Conference

Denver, Colorado
July 21-23, 2017
Marriott Tech Center

click here for more information
TSSUS National Conference

Mother/Daughter Campout
September 2017
Ironwoods Park
Leawood, KS
more details to come!

©Turner Syndrome Society of Kansas City
P.O. Box 7572
Overland Park, KS 66207-9998